My name is Tiffany and this is my story
I don't have all the answers and I don't remember all the names to the test or meds they put me on but I've had the surgery and i been through a lot.
I don't claim to be a expert but i do still suffer. I also have other health problems unrelated to Uc. So if you or someone you know could use a lil support feel free to join my group, and website.
I'll be here for you if you have questions.if i cant answer them I'll research it or ask someone in another group. Or if you just need to vent about how uc or crohn's affects you . Meds that bug you or doctors that piss your off. I'm here for ya. Or just anything in life that's bothering you .
Its not always easy and its not fun.
My names Tiffany and I'm 25. When I was 10 I started getting sick for no reason and was never hungry. I didn't know what was wrong with me and i started bleeding in my stools but i thought i was having my period and didn't tell nobody. i started losing weigh. i went from 95 pounds in a few months i was 65 pounds. My aunt took me and all our cousins to surf city water park and everybody got really tanned or burned and of course i was pale as hell..I was always curled up in a ball crying. my mom never had "The talk" with me so i never thought the blood was coming from the wrong place. So my cousin was staying all night and we girls were close, she was sitting in the bathroom with me talking when she asked me if i was on my period and i told her yeah and to shut up..
About three weeks later my cousin came back over and stayed again and of course we was in the bathroom (like always) and she being nosy asked me if I was on a different period and i told her no the same one whats it too ya and told her to mind her own business.thank god she didn't. The thing is shes like two or three years younger than me and knew that their not supposed to last that long and she told her mom, who called mine. I was so mad at her for telling on me, like I did something wrong..lol. but mom made me let her go in the bathroom with me the next time I went and that when i found out something was really wrong I was bleeding in my stool. they rushed me to the hospital, and I had so many test done on me. colonostomy, upper gi's lower gi's/ upper and lower gi's at the same time.flexible sig. something. sonograms. (I suck at spelling but I try..lol) so many tests I don't even remember them all i was on so many different med's before they could narrow down what was wrong with me. 6mp, prednzone. salt pills, iron pills, enema and all kinds a crazy pills some nasty ones that would dissolve on your mouth before you can get water in there..
I just remember being in children's a week, out two days, in a half a week, out three days, in 6 days. then they narrowed it down to IBD Inflammartory bowel disease so I was in for a whole week and a half and the came to the conclusion that I had ulcerative colitis. and put me on a bunch of different meds and nothing was working and but that time I has already lost alot of blood. I was basically was told i had to have my colon removed because it had so many holes in it from the ulcers and nothing was working I was going to die with out it.. They said my disease was to far gone to be fixed, so I got a "S" shaped pouch.
Since I've had another major surgery I'm not sure if its related to the ulcerative colitis or not but. dec.3 of 09 i had to be rushed to christ hospital they found a ten pound cyst on my right ovary crushing it and my tube. so dec.9th they removed the ten pound cyst and my right ovary and tube. and told me my left ovary was basiclly covered with scar tissue so I have a very small chance of ever having a baby.. that sent me into a depression.
I started to heal then I started gaining weight like I was 120 and now im 184 and I don't like it. It's been about a year and a half and they said I have multiple cysts on my left ovary.. so I had a choice to either take birth control to try to shrink it or a shot of menopause. I chose birth control. I felt it was making me crazy..
I already had high anxiety I didn't need more hormones. I get stressed out to easy and it really aggravates me sometimes.
I was on the birth control for about seven months and am finally off of it..I was smoking alot of pot to cope with the depression and pain and I thought it was helping but really it was making me way worse, It was making me sick and more depressed and emotional. so I quit smoking it almost six months ago and I quit smoking black n milds and drinking pop. I'm finally doing very well I don't have as much anxiety and I'm not depressed anymore.. I feel alot happier. I used to wish I would get pregnant. I always wanted to at least have one..I know me and my husband would make great parents. Now I think its better if I don't. I don't want to have a baby and then it end up having IBD to that's just not fair. Or it kill me , I'm not sure if my body could hand the weigh of a baby. I hope everybody's doing well and are not in to much pain.. I know the pain will never completely go away I had my first surgery to remove my colon when I was eleven and ill be 26 nov.10 and not a day goes by I don't have a lil belly pain. never like it was when I was little just enough to let me know I still have Ulcerative colitis and know it will never completely go away...but I feel so much better, healthier and happier..if I could only figure out how to loss ten the fifteen pounds I would be in there..thanks for reading my story I hope you share yours with me..:P
Thank you guys for visiting my website..Tiffany . Oh and if you know ANYBODY else with a S shaped pouch please let me know..I'm starting to feel like I'm the only one in the world with one.. and have no ideal why I didn't get a J pouch. Thanks for your time~!
I don't claim to be a expert but i do still suffer. I also have other health problems unrelated to Uc. So if you or someone you know could use a lil support feel free to join my group, and website.
I'll be here for you if you have questions.if i cant answer them I'll research it or ask someone in another group. Or if you just need to vent about how uc or crohn's affects you . Meds that bug you or doctors that piss your off. I'm here for ya. Or just anything in life that's bothering you .
Its not always easy and its not fun.
My names Tiffany and I'm 25. When I was 10 I started getting sick for no reason and was never hungry. I didn't know what was wrong with me and i started bleeding in my stools but i thought i was having my period and didn't tell nobody. i started losing weigh. i went from 95 pounds in a few months i was 65 pounds. My aunt took me and all our cousins to surf city water park and everybody got really tanned or burned and of course i was pale as hell..I was always curled up in a ball crying. my mom never had "The talk" with me so i never thought the blood was coming from the wrong place. So my cousin was staying all night and we girls were close, she was sitting in the bathroom with me talking when she asked me if i was on my period and i told her yeah and to shut up..
About three weeks later my cousin came back over and stayed again and of course we was in the bathroom (like always) and she being nosy asked me if I was on a different period and i told her no the same one whats it too ya and told her to mind her own business.thank god she didn't. The thing is shes like two or three years younger than me and knew that their not supposed to last that long and she told her mom, who called mine. I was so mad at her for telling on me, like I did something wrong..lol. but mom made me let her go in the bathroom with me the next time I went and that when i found out something was really wrong I was bleeding in my stool. they rushed me to the hospital, and I had so many test done on me. colonostomy, upper gi's lower gi's/ upper and lower gi's at the same time.flexible sig. something. sonograms. (I suck at spelling but I try..lol) so many tests I don't even remember them all i was on so many different med's before they could narrow down what was wrong with me. 6mp, prednzone. salt pills, iron pills, enema and all kinds a crazy pills some nasty ones that would dissolve on your mouth before you can get water in there..
I just remember being in children's a week, out two days, in a half a week, out three days, in 6 days. then they narrowed it down to IBD Inflammartory bowel disease so I was in for a whole week and a half and the came to the conclusion that I had ulcerative colitis. and put me on a bunch of different meds and nothing was working and but that time I has already lost alot of blood. I was basically was told i had to have my colon removed because it had so many holes in it from the ulcers and nothing was working I was going to die with out it.. They said my disease was to far gone to be fixed, so I got a "S" shaped pouch.
Since I've had another major surgery I'm not sure if its related to the ulcerative colitis or not but. dec.3 of 09 i had to be rushed to christ hospital they found a ten pound cyst on my right ovary crushing it and my tube. so dec.9th they removed the ten pound cyst and my right ovary and tube. and told me my left ovary was basiclly covered with scar tissue so I have a very small chance of ever having a baby.. that sent me into a depression.
I started to heal then I started gaining weight like I was 120 and now im 184 and I don't like it. It's been about a year and a half and they said I have multiple cysts on my left ovary.. so I had a choice to either take birth control to try to shrink it or a shot of menopause. I chose birth control. I felt it was making me crazy..
I already had high anxiety I didn't need more hormones. I get stressed out to easy and it really aggravates me sometimes.
I was on the birth control for about seven months and am finally off of it..I was smoking alot of pot to cope with the depression and pain and I thought it was helping but really it was making me way worse, It was making me sick and more depressed and emotional. so I quit smoking it almost six months ago and I quit smoking black n milds and drinking pop. I'm finally doing very well I don't have as much anxiety and I'm not depressed anymore.. I feel alot happier. I used to wish I would get pregnant. I always wanted to at least have one..I know me and my husband would make great parents. Now I think its better if I don't. I don't want to have a baby and then it end up having IBD to that's just not fair. Or it kill me , I'm not sure if my body could hand the weigh of a baby. I hope everybody's doing well and are not in to much pain.. I know the pain will never completely go away I had my first surgery to remove my colon when I was eleven and ill be 26 nov.10 and not a day goes by I don't have a lil belly pain. never like it was when I was little just enough to let me know I still have Ulcerative colitis and know it will never completely go away...but I feel so much better, healthier and happier..if I could only figure out how to loss ten the fifteen pounds I would be in there..thanks for reading my story I hope you share yours with me..:P
Thank you guys for visiting my website..Tiffany . Oh and if you know ANYBODY else with a S shaped pouch please let me know..I'm starting to feel like I'm the only one in the world with one.. and have no ideal why I didn't get a J pouch. Thanks for your time~!